Welcome to HOLLAND: I just wanna ride the ride...

Why HOLLAND?

When you're going to have a baby, it's like planning a fabulous vacation to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum, The Michelangelo David, The Gondolas in Venice. You may lern some handy phrases in Italian, it's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The Stewardess comes in and says "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy, all my life I've dreamed of going to Italy."
But there's been a change in flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learna whole new language. And you will meet a whole new group of people you would have never met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things... about HOLLAND.

Thursday, February 3, 2011

I just wanna ride the ride...

On Wednesday Ben and I took Jack to the Immunologist. We were referred to him due to Jacks recently diagnosed "OAT allergy." Can I just tell you what a waste of time that visit was? We sat there for EVER waiting to get in, then to be seen, then to be tested and then to be seen AGAIN... I was so frustrated!!!

When the Doctor finally came in he said "the test came back NEGATIVE for the oat allergy. In fact, he has NO allergies"... AMAZING news! Then he says "I don't think he has Cystic Fibrosis but I am just a dumb immunologist." WHAT?!?!?!? You mean to tell me that YOU, one out of 4 Doctors, think he doesn't have CF?

Here is where we go up and down, round and round, A G A I N!!! Thus the title of this post!

The Immunologist requested a scope of Jacks throat, he will chart his concerns, send them to our Pediatrician and advises us to contact Dr. B!

*WAIT...... did you just say my Son may not have CF?*

AND again, follow up with our Ped.

A few hours later I call Dr. B's office hoping for results on the GENETIC TEST and nothing! 1 week has turned into 10 days and now I'm advised to wait til Monday, yup.... Monday, oh well we have a weight check that day anyway! The Immunologist contacted Dr. B directly (that was nice) to express his concerns. Dr. B thinks the scope is a good idea but not for a few months. AND there is a chance Jack's genetic testing may provide proof that he does NOT have CF.

Again WHAT?!?!?!?!?

"Don't get your hope up" I was advised.

Well guess what? It is the weekend and I am going to be HAPPY and HOPEFUL at least until Monday. SO THERE!

Love to you all, The Mom