We have an UP-date...

I just received a call from Primary's GI Clinic. Dr. Molly O'Gorman requested the scope for Jack's tummy. We have to be there at 6am on Tuesday the 19th. Jack will be under general anesthesia for 1 hour. We should be able to go home around noon. Remember to pray for him! Love, The Mom

This is late...

I am so sorry for not posting this before now BUT as most of you know, I sent messages and called everyone within a 3 second window as fast as I could! Jack's Cystic Fibrosis genetic tests came back FINALLY!!! When I called the lab to see if the results were back I was lucky enough to talk to that same nice caring guy I have blogged about prior to now. He said "your Doctor will get a fax and let you know the results BUT... I'm sure not going to keep you waiting any longer then you already have. Your Son DOES NOT have cystic fibrosis!!!!!!!" I couldn't even process what he said I was crying so hard. Next step... back to GI to watch weight gain and loss and schedule for a scope. BUT, before that step... we celebrated as a Family at the Movies! Thanks everyone for following and continuing to follow. Please keep the prayers coming! Love, An ECSTATIC Mom

To my Human Angel, Jackee

These are the lyrics to a song by Train. They explain just how much I plan on protecting my baby thru all of this!

I wanna take you with me

to life with no more yesterdays

we can start again awake and so excited

and change the way we always push

I'll open up and be your parachute

and I'll never let you down

so open up and be my human angel

and we'll only hit the ground

RUNNING

and when the world gets sharp and tries to cut you down to size

and makes you feel like giving in

oh, I will stay, I will rain, I will wash the words and pain away

and I will chase away the way we push

the way we pull

you're beautiful

I'll open up and be your parachute

and I'll never let you down

so open up and be my human angel

and we'll only hit the ground

RUNNING

and if it feels like we may drop

it will stop

so don't look down

it wouldn't be the same without you

this life is too good to give up on

I'll open up and be your parachute

and I'll never let you down

so open up and be my human angel

and we'll only hit the ground

and we're gonna hit the ground

RUNNING

Not much to update except...

... more of my, I'm done waiting, done being nice, done, done, done... ATTITUDE!

So sorry to my followers for the "tude" it is what it is when you're the Mother Bear!!

Ok so, I decided it was time to stop asking my slammed busy Pediatrician and his slammed busy Nurse to check for results. I retrieved the phone number to the lab that has possession of MY child's blood and gave them a call. AGAIN, it was NOT nice... did ya think it would be? Ha Ha!!!

After the Lab technician had his head chewed off for telling me that Jack's blood work was pending, he began to apologize. He actually was an incredibly sweet guy. He told me the process of breaking down EVERY gene in our bodies, from head to toe... how many's and what colors! THEN (this is the part I liked... and it's also the part that adds time to this test) they lab technician DOUBLE checks EVERYTHING that is abnormal. That sweet guy also told me that the results will be here NO LATER than Tuesday March 22nd. I sure hope he understands what a promise like that means to this Mom!

Oh ya, little Jack is playing Machine Pitch Baseball this year for the Chicago Cubs! He would LOVE to see any of his blog followers cheer him on!!!

Love,
The Mom

GI Clinic Visit March 9th, 2011

Last Wednesday Jack had his appointment with the GI Doctor at Primary's GI clinic. I wasn't looking forward to this appointment at all. First, I had a feeling it would be a waste of time and Second, I DO NOT love the Doctor. She is very rough and cold. I feel like you are another number to her, another problem that she can cattle in and out quickly.



Both things I felt happened immediately, no new news and an abrasive rude Doc!

What a WASTE!

Most of you who know me, know that I learned from my Mom to NOT take any ones crap. (Thanks Mom) So, after a few careless words from Dr. Evil (ha ha) I grabbed my purse and told the boys "Come on we are leaving." She instantly changed her attitude and began to tell me "I know you are stressed, I see scared Parent's like you all the time etc." I interrupted her and said "I don't care if you see Parent's that are worried and stressed all the time. This time, this hour it's ME and MY Son. You don't know how I feel and you better never compare one scared Mother to another. I am done her and I will return to my Pediatrician." Boy did she mellow out quick! She started spitting out apologies and reasons why and this & that. Then she begged me to give her a chance to help us. I think I made it pretty clear that she is treading deep waters!

*Deep Breath*

Now that that's out of the way :) Dr. *BLANK* said that Jackee has gained 1lb from Jan 19th to March 9th. That is GREAT! She said she doesn't care about the pounds he has gained and lost in between! Because the genetics are STILL NOT BACK we are still at a wall. No good news, no bad news. Jack was also started on a new medicine that he takes 3 x per day to stimulate his appetite. I have noticed him to be a little hungrier BUT, it makes him so sleepy. When I say sleepy, I mean 1-2 hour naps after each dose. According to the Doctor he will get used to it but it may take up to 3 months. I have to just throw my hands in the air and say "WHATEVER" with a BIG smile!

I sure hope everyone is doing good and enjoying this beautiful SPRING weather!

Love,

The Mama

Day Since...

Well here we are March 1st, 2011...

58 days since my concerns became REAL

40 days since GI Clinic

39 days since Upper GI Series

38 days since Cystic Fibrosis / Sweat Chloride Test

38 days since FIRST notification of high result on Sweat Test

35 days since Cystic Fibrosis was CONFIRMED

29 days since Genetic Tests

21 days since 1st HALF of Genetic Test Results came back that gave us some HOPE.

9 days til our Doctor gets back from AFRICA (Really... traveling on your own time? ha ha)

6 days since we've been to the Doctor

5 days since Jack's missed school

2 days since he last complained of Stomach Pain

and...... DRUM ROLL

5 minutes since I last inquired about the SECOND half of his Genetic Test!

Today is a good day! In fact, this week has been good so far! I think after the rough week that we had in the BANKS house... last week, not much can get worse. I know, I know... I'm tempting fate by asking for more. Ha, well bring it on we are armed and ready! OK, don't!

The good news... with it being March we are that much closer to SPRING!!! Yippee!!!

I sure hope everyone is enjoying a little bit of sunshine here and there, when you can!

Life is SIMPLE.

Love,

The Mom

A new week, No answers and an Un-sure Mom...

The last few days have been pretty up and down. My mood has dropped and I have become frustrated and worried. I am down right DONE with waiting. Waiting for tests, waiting for Jack to eat more, waiting to figure out whats really going on with MY baby.

Why do I feel so alone? I am left in the dark and there is no light switch.

Yesterday was President's day, to me it was a much needed day off. Besides all the days I have taken off, this one was scheduled. It was nice to sleep in, play with the boys (I'm not going to lie, I wanted to ring their necks like a dish rag!) clean the house and make a nice dinner. All in all, I LOVED it... every single second!

So, I ask. Why do our moods change so quickly? Why do we feel so happy, careless and free one minute then BANG... so down the next? For your own information I do see a Doctor and I do take crazy meds why? Cuz I AM GOING INSANE!

Sorry for such a yucky post, just felt the need to clear the air!

Love to you all,
The Mama